The Victoria and Stuart Project - End of life care planning with people with learning disabilities.
This video shows the rationale, methods and results of The Victoria & Stuart Project, in accessible format.
End of Life Care Planning Toolkit - The toolkit was created together with people with learning disabilities, families, learning disability support staff, and healthcare professionals. It includes resources and approaches to support staff with end of life care planning with people with learning disabilities.
Easy Read Summary of The Victoria And Stuart Project
Easy Read Information Resources
The DAVID project has worked to empower people with learning disabilities and those that support them to start conversations. They have made resource booklets accessible to people with learning disabilities so that they can understand death, make their own end of life plans and have conversations with their support system. The easy read booklets can all be downloaded on the free resources page here
The Leeds Palliative Care Network has also produced a number of information leaflets in easy read format here
Learning from lives and deaths – people with a learning disability and autistic people (LeDeR).
People with a learning disability and autistic people often have poorer physical and mental health than other people and may face barriers to accessing health and care to keep them healthy. LeDeR focuses on learning from the lives and deaths of people with a learning disability and autistic people. It is about local service improvement which enables local systems to better understand why people are dying early and what we can do to change services locally and nationally to improve the health of people with a learning disability and autistic people and reduce health inequalities. You can find out more here.
Speakup Self Advocacy
The following videos were developed by South Yorkshire ICB 2023 in collaboration with Speakup Self Advocacy.
Coping with Death: Coping with Grief
Coping with Death: Advance Decisions
Coping with Death: Making a Will