Advance Care Planning (ACP)
ACP is a discussion between an individual and their care provider(s). It is to make clear an individual's wishes and preferences about their future care and treatment. The following resources are available both locally and nationally to support this process.
Local Resources
What Matters to Me - Information for Professionals - Knowing what matters to a person helps us to understand their priorities and needs, and how best to support them to achieve them.
What If Things Change - This booklet produced by Leeds Public Health helps you to think about what matters to you and what you like to happen if things changed or if you suddenly became ill.
LPCN Guide to Advance Care Planning
My Future Wishes – A Guide to Advance Care Planning - This guide is a resource pack designed for patients, families and professionals to help them have conversations about their future wishes for care and to record these in the form of an advance care plan. Please note – Practitioners should use local resources provided to them by their organisation when undertaking individual personalised assessment and Advance Care Planning.
An easy read version of the above guide is here - My Future Wishes: Advance Care Planning
Advance Care Planning and Bereavement Toolkit
The West Yorkshire Advance Care Planning and Bereavement toolkit includes resources for people to have better conversations, support and personalised care about advance care planning and bereavement. The toolkit was developed to ensure our workforce is equipped with resources to connect and support people across West Yorkshire with a range of needs and backgrounds, who may be experiencing inequalities and barriers in accessing information, services and advocacy.
Supportive and Palliative Care Indicators Tool (SPICT)
Redmap Framework
ReSPECT / Planning Ahead Template
The approach to Planning Ahead in Leeds allows recording of these conversations from an earlier stage of the patient’s journey and includes:
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What Matters to Me – key questions designed to help think about what matters to a person and facilitate a better, more personalised conversation.
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ReSPECT (Recommended Summary Plan for Emergency Care and Treatment) – a tool developed by the Resus Council UK.
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EPaCCS (Electronic Palliative Care Coordination System) to support end of life care.
Leeds as a healthcare system has agreed to adopt the national ReSPECT process. Training is delivered within all partner organisations and links are made within electronic patient record systems so ReSPECT plans can be completed and shared effectively with the professionals involved in providing care. Completion of this advance care plan requires the professional to have skills and knowledge about care planning with the patient, mental capacity, informed consent, best interest decision making and resuscitation recommendations. Please click here for further information and access to nationally developed e-learning.
Useful ReSPECT resources can be found within the supporting files section here Resuscitation Council – ReSPECT Resources
National Resources
Universal Principles for Advance Care Planning – NHS England
New Planning Ahead Tool | Hospice UK
This tool explains the kinds of decisions many people wish they had prepared for, and it gives various options to think about.
Decisions Relating to CPR - On this page, you’ll find a selection of resources that are useful to those looking to learn more about CPR decisions, including DNACPR
Advance decision to refuse treatment | Macmillan Cancer Support
Support and guidance relating to an advance decision to refuse treatment (ADRT). This tells other people about any specific treatments that you do not want to have in certain situations