COVID-19 advice and support for healthcare professionals in Leeds.

Leeds Palliative Care Network
Leeds Palliative Care Network

Advance Care Planning

ReSPECT / Planning Ahead

The approach to Planning Ahead in Leeds allows recording of these conversations from an earlier stage of the patient’s journey and includes:

  • What Matters to Me – key questions designed to help you think about what matters to a person and facilitate a better, more personalised conversation
  • ReSPECT (Recommended Summary Plan for Emergency Care and Treatment( updated to the new national version 3
  • Updated version of the EPaCCS to support end of life care

Leeds as a healthcare system has agreed to adopt the national ReSPECT form. Training is being delivered within all partner organisations and links are being made within electronic patient record systems so the forms can be completed and shared effectively by all professionals. Completion of this advance care plan requires the professional to have skills and knowledge about care planning with the patient, mental capacity, informed consent, best interest decision making and do not resuscitate decisions. Please click here for further information and access to nationally developed e-learning.

More information can be found on our ReSPECT Training Resources page.

National and local resources

National resources 

NHS Planning Your Future Care
This NHS booklet provides a simple explanation about advance care planning and the different options open to you. This information is also available in six other languages – please click here.

Preferred Priorities of Care

Decisions Relating to CPR

Universal Principles for Advance Care Planning – NHS England 

New Planning Ahead Tool | Hospice UK
This tool explains the kinds of decisions many people wish they had prepared for, and it gives various options to think about.

Advance decision to refuse treatment | Macmillan Cancer Support
Support and guidance relating to an advance decision to refuse treatment (ADRT). This tells other people about any specific treatments that you do not want to have in certain situations.

Local resources 

My Future Wishes – A Guide to Advance Care Planning

This is a very useful resource pack about Advance Care Planning produced by West Yorkshire and Harrogate Health and Care Partnership. It provides lots of information about what Advance Care planning is, why it is important and guidance on how to carry it out. There are also embedded links to other guidance and tools.

Please note – Practitioners should use local resources provided to them by their organisation when undertaking individual personalised assessment and Advance Care Planning.

This booklet help people to consider and prepare for what they would want to happen if they became unwell and (eventually) their plans for their end of life.  Your role is to signpost and support people to use the booklet. Please encourage them to take it home and have a think about the questions in their own time. It’s not something to be returned or handed in to anybody once completed. Physical copies of the booklets and posters can be ordered by emailing the Public Health Resource Centre who should be able to deliver them to you:

The West Yorkshire Advance Care Planning and Bereavement toolkit includes resources for people to have better conversations, support and personalised care about advance care planning and bereavement.

The toolkit was developed to ensure our workforce is equipped with resources to connect and support people across West Yorkshire with a range of needs and backgrounds, who may be experiencing inequalities and barriers in accessing information, services and advocacy.